Your people are carrying something your org chart does not show.
Kids Rare Care™ equips corporations, healthcare systems, schools, disability and rare disease organizations, associations and faith communities to strengthen family engagement, advocacy, inclusion and leadership.
Bring a free family workshop to the families you already serve.
You have the relationships. We have the session. Tina delivers 30 to 60 minutes of practical, immediately usable content to your families, virtually or in person, at no cost to your organization.
This is how she learns what families are actually dealing with, and how your families get real tools without another referral or waitlist. Everyone who attends leaves with a resource bundle they can use the same week.
You pick the format
30, 45 or 60 minutes. Virtual or in person. A standalone session or part of an event you already run.
Tina brings the content
Offloading tasks, building supported independence, advocacy as collaboration, or caregiver capacity. Chosen to fit your families.
Families leave with tools
A resource bundle, the Mom Capacity Snapshot™ assessment, and a clear next step if they want to go further.
Practical training your teams can use on Monday.
Interactive sessions built from three decades inside the systems families navigate, delivered by someone who has sat on both sides of the table.
Family Engagement Partnership
How to move families from recipients to partners, and why collaboration outperforms confrontation for everyone in the room.
Disability Awareness & Inclusion
Practical inclusion training for staff and volunteers, drawn from curricula that trained hundreds of volunteers.
Family Advocacy & Collaboration
Equipping professionals to hear and elevate the family voice in decisions that affect real lives.
Leadership in Complex Systems
Deciding and communicating well when the path is complicated, the rules are dense and the stakes are personal.
Caregiver Wellness & Resilience
For employers and ERGs: what working caregivers are carrying, and what actually reduces the load.
Transition & Supported Independence
Supporting children and young adults as skills build, services end and adulthood begins.
Community Inclusion & Self-Determination
Building communities where people with disabilities participate rather than attend.
Faith Community Disability Training
Equipping congregations to welcome and include families well, developed through work with Joni and Friends.
Custom curriculum
Sessions built to your audience, your systems and your outcomes. Pricing on request after a short consultation.
The audiences we are built for.
Corporations & employers
Employee wellness, caregiver support programs, ERGs, women's leadership and workplace resilience.
HR & benefits leaders
Supporting employees balancing demanding careers with caregiving, and reducing caregiver-related attrition.
Healthcare & public health
Family engagement, patient and caregiver perspectives, health literacy and communication across complex systems.
Schools & universities
Family engagement, transition planning, collaboration, disability inclusion and professional development.
Disability organizations
Self-determination, community inclusion, transition to adulthood and greater independence.
Rare disease organizations
The family experience, navigating complex systems, and partnership between families and professionals.
Caregiver & family conferences
Caregiver resilience, sustainable support systems, self-advocacy and life beyond caregiving.
Faith-based & community groups
Faith, resilience, hope, disability inclusion and building communities where families belong.
Partner with us.
Beyond training contracts, Kids Rare Care™ builds long-term partnerships with organizations that serve the same families we do.
That has looked like founding Quest for Rest, a respite program that gave families three hours of relief and still runs today. It has looked like developing volunteer training curricula and training hundreds of people to use them. It has looked like mentoring mothers monthly and facilitating family engagement workshops for the organizations that serve them.
Respite & family support
Programs that give families relief while young people are cared for well.
Volunteer education
Curricula and training that prepare volunteers to serve families with confidence.
Faith community inclusion
Helping congregations become places where families with disabilities belong.
Whether you carry this at home or lead a room full of people who do.
Families start with the assessment. Organizations start with a conversation. Both take about five minutes to set in motion.