Suddenly Brave Together
Thirty letters from experienced caregiving mothers to those just beginning. Tina's contribution was letter number two of the thirty chosen.
Get the book →
Communications, publications & products
What we publish, and what we put in your hands.
The educational communications of Kids Rare Care™, alongside the practical tools families use to organize what they are carrying.
Flagship publication
The Rare Reader™
The institute's educational newsletter for families navigating rare disease and medical complexity. Twice a month, in text and audio, covering family advocacy, disability resources and practical guidance.
Paid subscriptions now include the Rare Reader Resource Library™. The library begins with five practical tools and grows through the year. As long as the subscription stays active, access to the growing library stays with it.
Books
Published and forthcoming.
Advocate Like Queen Esther In progress
Tina's forthcoming book on courage, timing and speaking up on behalf of people who cannot yet speak for themselves.
Hear about it first →
Resource library & products
Tools that hold what you are asked for over and over.
Kids Rare Care™ Planner
October, November and December 2026. Created with the Care Partners Project.
Order →
Child's Caregiver Planner
Undated, so it starts whenever you do. Created with the Care Partners Project.
Order →Worksheets, advocacy guides and independence planning templates are being prepared for release.
Worksheets & guides
Advocacy worksheets, educational guides, workshop workbooks and independence planning templates, released as each is finished.
Get notified →
Two ways to begin
Whether you carry this at home or lead a room full of people who do.
Families start with the assessment. Organizations start with a conversation. Both take about five minutes to set in motion.