Rare Disease Support
Your certified guide to
This is your certified guide to navigating the complexities of rare diseases affecting children birth to ages 12 years old. We provide comprehensive support and resources designed to empower parents in their journey, ensuring they have the knowledge, advocacy, and community connections needed to advocate effectively for their child's care and well-being.
“Every child comes into the world as a blank slate. It is up to you as a parent to write on the heart on that child.
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WORK WITH TINA
1:1 Mentoring and Support
Our one-on-one mentoring program offers personalized support for parents of infants and toddlers with rare diseases, connecting them with experienced mentors to navigate challenges and foster resilience.
Group Mentoring and Support
Our group mentoring program brings together parents of infants and toddlers with rare diseases, fostering a supportive community where they can share experiences and insights. This collaborative environment encourages mutual learning, emotional resilience, and empowerment, helping families navigate their journeys together.
Hire Me to Speak
Hire me to speak at your event, and I will share valuable insights and personal experiences of navigating life with a child living with a rare disease. My engaging presentations are designed to inspire, educate and empower the community, offering practical strategies and emotional support for parents, caregivers, educators and healthcare professionals.
Together we foster a greater understanding of the unique challenges families face, raise awareness about rare diseases, and advocate for the needs of all individuals impacted by these conditions. Let’s work together to build a supportive and informed community dedicated to making a difference.