Mother and caregiver to Tionna Jackson (aka Miss T) now 29 years old and born with a rare genetic disease called Trisomy 8 Mosaicism.

Our family’s rare disease journey has taken us through countless painstakingly challenges and unexpected destinations that have tested our faith time and time again.

Even still, it is the BUT God moments that have strengthened us to stay deeply connected to our faith and trust in God.

Nevertheless, we were determined to develop a framework to helping our daughter excel in all areas of her life. Ultimately, to become very active and a contributing citizen within her community.

Parents we are here for you through your pain, challenges and triumphs because we care about your situation.

We are here to travel the complex path of helping you navigate your rare disease your journey.

Also, we look forward to helping you discover the unique brilliance and strengths within your child.