I was born with a rare disease called Trisomy 8 Mosaicism. I was born failure to thrive and was not supposed to live a viable life.

BUT by God’s grace, I am thriving! My parents worked with me to create a life combined with a circle of supports, so I can live my best life!

I am a self-determined advocate, which means I live life on my own terms. I choose what is best for my life.

Also, I advocate for others to ensure people living with a rare disease or varying disabilities are treated with dignity, respect and have the best supports afforded to them in every sector of our communities; medical, work, social spaces etc.

I have joined forces with my mother to raise awareness of those living with a rare disease.

Please find a list of my employment and community activities:

Education:

• High school graduate (Homeschool)

Employment:

• McAllister’s Deli - 4 years (Arkansas)

• McDonald’s - 2 years (Arkansas)

• Foodwise Grocery Store - 6 months (Arkansas)

Professional & Community Activities:

• Public Speaker

• Kids As Self-Advocates (KASA) Board Member

• Regional Advisory Council (RAC) Board Member, Missouri

• Disability Champion Award, Nominee

Volunteer Activities:

• Style Room, Missouri

• Mid-Continent Public Library, Missouri

• John Knox Village, Missouri

• Good Shepherd Hospice, Missouri

• Traveled to Washington DC to the White House to the attend the Achieving Better Life (ABLE) Act Celebration