Mothers
Mothers of children with disabilities or complex medical conditions, from early childhood through adulthood.
Kids Rare Care™ empowers mothers to become confident advocacy leaders, strengthen their child's independence and support systems, and create capacity to pursue their own dreams.
Speaking and partnerships
Mothers of children with disabilities or complex medical conditions, from early childhood through adulthood.
Disability-serving organizations that want stronger family partnerships.
Conferences, agencies and professionals who serve these families.
For many, independence includes lifelong support. We help mothers plan for what independence means for their child, at every stage.
The From Mom Manager to Mom Visionary™ mentorship and the B3 framework.
Explore family leadership →Professional development, organizational workshops, and keynotes by Tina and Miss T.
Explore speaking and training →The Rare Reader™, books, educational resources, community partnerships and rare disease initiatives.
Explore resources →Recognize possibilities and develop a vision for Mom and her child.
Develop skills, meaningful choices, dependable support systems and practical plans appropriate to your child's age and needs.
Become a confident advocacy leader who prepares for the future and creates capacity to pursue her own dreams.
A 50-day mentorship built on the B3 framework that helps a mother move from managing every responsibility to leading with confidence and a clear plan.
Start with the free Are You Ready? assessment. When you finish, you receive your free Mom Capacity Snapshot™.
A 6-month mentorship cohort that builds mom capacity, leadership and a practical plan for greater independence, with shared progress reports for your organization.
“No mother should have to spend her life holding everything together while silently wondering what happens to her child when she is gone.”
Tina Vincent, Founder & CEO, Kids Rare Care™
Thirty years ago she was told her daughter would not survive. Today Miss T lives in her own home with 24-hour support, has held four jobs over thirteen years, and shares the keynote stage with her mother.
Between those two points sits a 22-year federal career, three years as a Social Security Title XVI Claims Specialist interviewing families at the exact moment their child turned 18, a degree in Social Psychology, and 26 years of advocacy, training and community leadership.
Her daughter's journey is part of her credibility. It is not the whole of her professional identity.
Miss T, Tionna Jackson, is a self-determined professional, a speaker and a community advocate. She lives with Trisomy 8 Mosaicism, a rare genetic condition, along with intellectual disability and barriers to communication, and she presents alongside her mother using her augmentative and alternative communication device. She has held four jobs across thirteen years, graduated from Project SEARCH at Arkansas Children's Hospital, and stood in the White House for the ABLE Act ceremony.





The institute's educational newsletter for families navigating rare disease and medical complexity. Twice a month, in text and audio, now including the Rare Reader Resource Library™.
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Thirty letters from experienced caregiving mothers to the ones just starting, plus caregiver planners built to hold the medical, educational and daily information families are asked for over and over.

Educational resources, guides and tools for families and the professionals who support them, all in one place.
Visit the Resource Center →Share where your family is today and what you need most. You'll leave with a clear next step, whether that's the mentorship, a workshop or a partnership for your organization.
Mothers start with the free assessment. Organizations start with a partnership conversation.