Mission
Our mission is to empower parents of children birth to 12 years of ages with rare diseases, medically fragile or developmental delays. We teach advocacy skills, share resources, offer emotional support, community connections, and education. We guide families through healthcare challenges, reduce isolation, and equip them with the knowledge to advocate confidently for their child’s care.
Our vision is a world where every parent and caregiver feels empowered, supported, and connected. We envision a compassionate community that fosters resilience, ensures access to essential resources, and promotes informed advocacy, ultimately transforming the journey of families facing rare diseases into one of hope, understanding, and strength.
Our Goals: ACCE
Advocacy:
The goal is to empower parents by providing guidance, resources, and a strong voice in their child's care. This includes navigating medical systems, securing treatments, and advocating for better healthcare access.
Community
The goal of providing community support to parents is to create a strong, connected network where families can share experiences, resources, and encouragement. This support builds a sense of belonging, reducing isolation while fostering mutual understanding and collaboration among parents facing similar challenges.
Compassion
The goal of providing compassion support for parents is to offer emotional comfort, understanding, and a sense of connection. This support helps parents cope with the stress and isolation of caring for a child with complex needs, fostering resilience and hope through a compassionate community.
Exposure
The goal of providing a proven and successful framework to use exposure as the catalyst for children with rare disease, medically fragile or those with developmental delays to gain inclusion into all areas within their community.